STEP-UP
Study to Expand Registry Participation of Underrepresented Populations (STEP-UP)
STEP-UP Overview
STEP-UP (Study to Expand Registry Participation of Underrepresented Populations) is research program led by Banner Alzheimer’s Institute and University of Delaware in collaboration with colleagues at the University of Pennsylvania and Rutgers University. The overarching goal of STEP-UP is to increase enrollment of underrepresented adults into Alzheimer’s participant recruitment registries and trials to ensure that (1) studies that use registries for recruitment can enroll participants reflective of the population and (2) the fundings from these studies are generalizable. To accomplish this, STEP-UP researchers conducted a series of studies including but not limited to:
- Elicitation interviews
- National surveys
- Focus group interviews
- Online studies
API Colombia Registry
The API Colombia Registry, a program led by API partners at the University of Antioquia, includes more than 6,000 members of the PSEN1E280A kindred, a genetic mutation that puts carriers at virtually certain risk of developing symptoms of Alzheimer’s dementia around age 45.
Our Partners
STEP-UP is supported by a grant from the National Institute on Aging (R01AG063954) as well as the Arizona Alzheimer’s Disease Research Center (P30AG072980).